Consumer Research

Consumer Research

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Consumers and prostate cancer research

Your voice and experience are important! As a consumer, you have a valuable part to play in helping to improve how prostate cancer is prevented, detected, diagnosed, treated and managed in the longer term.

Who is a consumer?

In your toolkit, we define a consumer as:

  • a person diagnosed with prostate cancer
  • a partner or family member of someone diagnosed with prostate cancer
  • a person at risk of getting prostate cancer
  • a member of the public who is interested in prostate cancer.

What is consumer research?

Consumer research studies are an important way for researchers to learn about the challenges men with prostate cancer and their families face and how their quality of life and survival can be improved. By taking part in this research, you can help make a difference.

What does it mean to be involved in consumer research?

What is involved in consumer research will differ according to the study. If you are eligible, you will be given information about the research project including its purpose, what you will be required to do, how long it will take, how your information will be kept private and who you can talk to about the study. You will also be given information on possible benefits and risks, and you will be required to give your consent. Make sure you understand what is required of you before you decide to take part in the study.

Join a consumer research study today

Taking part in consumer research is often an interesting and rewarding experience. Researchers could not do these studies without the help of people like you. This part of your toolkit provides a current list of research projects that are looking for consumer involvement.   

Check this page regularly for a list of consumer research projects that you may be eligible to join.

Note: all studies listed on this page must have current Human Research Ethics Approval. Unless otherwise stated, these are not PCFA studies, we do not fund them and are not involved in them. Please contact the researchers directly about these studies.

Caring for Older Adults with Cancer: A qualitative study of experiences of treatment decision-making.

Researchers from the University of Sydney are conducting a study to explore older adults with cancer and their caregiver’s experiences and views about treatment decision-making.

They would love to hear from you if you:

  • Identify as an older adult with an existing or previous cancer experience OR currently provide care for an older adult with cancer.
  • Are able to speak English.

If you agree to participate, you will be asked to complete the following research activities:  

  • Complete an online questionnaire (10-15 minutes)
  • Participate in a telephone interview (40-45 minutes)

Your experiences and thoughts will help us understand how treatment decisions for older adults are made and help us improve how cancer care is provided. 

If you are an older adult with cancer, please click the link below for more information or to register your interest:

If you are currently providing care for an older adult with cancer, please click the link below for more information or to register your interest:

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Downloadable resources